Well, here it goes his first round of chemo is done. We weren't able to use one of the drugs because his heart was too weak. We had no idea he was having any heart trouble either....this little man has given no warning signals for anything. We did get news that the bone scan was good no new hot spots. He had an OK first night they drugged him up for nausea pretty good but found out that it was almost too much because Thursday his emotions were all over the place. Which made it really hard on mom too to see him be so upset and crying. Yesterday was a much better day they gave him low doses of his anti nausea meds and he didn't cry one time. He also got a little nap in here and there. I need to remember to bring up more things to help him take his mind off of it. We had a few visitors to come up and help pass the time A big shout out to you all for doing that. It was much appreciated. He is scheduled to come home today sometime. The echo on his heart yesterday was much better. I am not sure if the Dr's are going to try to use the other drug next round or not. We will have to wait and see. Please keep him in your prayers. We are not sure when we go back.
Derrick and Kyle came up last night for a visit but Kyle was not able to go see him. The rules are no one under 14 can go up to floor. So he was pretty mad. We had dinner at the cafeteria with Grandma and Grandpa Harris there and then Denzil got to stay the night and I got to go home for a rest in my own bed. Kyle ran up to me showing me his perfect report card and Derrick was sporting a new shaved head in support of his "little chunk" (that's Devin's nickname and ...he doesn't mind it he says). They had a good week at home with G and G Harris and got to have Shane their cousin stay the night last night. Today they get to go to the BYU football game and I get to take them. I think I need the distraction. I can't go back up there right now. I am a bag a nerves right now.
I came home to a wonderfully clean home thanks to all the sisters that made that possible. You have to know how much I appreciated that.
Love to you all please know our love for you all.
Karen
Saturday, November 21, 2009
Thursday, November 12, 2009
Welcome to our family blog. We have set this up to keep you informed of our families happenings and events. As many of you may know we recently found out that Devin has been re-diagnosed with cancer. On Monday, November 9th, I took Devin to the doctor to get his H1N1 flu shot. Before we left the house, his mobility aide, Jalayne, mentioned that he was walking funny and to check his leg. While at the Dr. we looked at his legs and noticed he had a swollen right knee. We didn't think it was a big deal because it really hadn't been bothering him much. The doctor did seem concerned though because it was 3" bigger than the other one. They took an X-ray, and then knocked us off our feet when they told us it was cancer.
The very next day we were at Primary Children's doing a CT, getting bloodwork, and doing a MRI on his knee. The bloodwork results came back very good, which was encouraging.
On Wednesday Devin got a full body scan and an echo on his heart. At this time we were told they found cancerous spots on his lungs as well.
We are scheduled to do a biopsy on his knee on Friday, November 13th as well as put in a PICC line for the chemo that we will be starting next week. We are still waiting for the results of the echo and the body scan.
Things are moving very quickly right now and nothing is certain. We wish we could have called everyone personally to talk about all that is happening, but it is just not possible with the limited time each day provides. We will use this site to keep everyone updated. We cannot always return calls right away, but please know how grateful we are for your thoughts, prayers, and concerns. This has been a challenge for the whole family and some moments are harder than others, but for the most part we are holding up well and are moving ahead.
We love you all. Please keep our whole family in your prayers.
The very next day we were at Primary Children's doing a CT, getting bloodwork, and doing a MRI on his knee. The bloodwork results came back very good, which was encouraging.
On Wednesday Devin got a full body scan and an echo on his heart. At this time we were told they found cancerous spots on his lungs as well.
We are scheduled to do a biopsy on his knee on Friday, November 13th as well as put in a PICC line for the chemo that we will be starting next week. We are still waiting for the results of the echo and the body scan.
Things are moving very quickly right now and nothing is certain. We wish we could have called everyone personally to talk about all that is happening, but it is just not possible with the limited time each day provides. We will use this site to keep everyone updated. We cannot always return calls right away, but please know how grateful we are for your thoughts, prayers, and concerns. This has been a challenge for the whole family and some moments are harder than others, but for the most part we are holding up well and are moving ahead.
We love you all. Please keep our whole family in your prayers.
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